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Genetic and Rare Diseases Information Center (GARD)

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Bannayan-Riley-Ruvalcaba syndrome

Other Names for this Disease
  • Bannayan-Zonana syndrome
  • BRRS
  • BZS
  • Macrocephaly multiple lipomas and hemangiomata
  • Macrocephaly pseudopapilledema and multiple hemangiomas
More Names
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Organizations Supporting this Disease

  • Breast Cancer Network of Strength
    212 West Van Buren
    Suite 1000
    Chicago, IL 60607
    Toll-free: 800-221-2141
    Telephone: 312-986-8338
    Fax: 312-294-8597

  • CancerCare
    275 Seventh Ave, Floor 22
    New York, NY 10001
    Toll-free: 800-813-HOPE
    Fax: 212-712-8495

  • National Alliance of Breast Cancer Organizations
    9 East 37th Street
    10th Floor
    New York, NY 10016
    Toll-free: 888-806-2226
    Telephone: 212-889-0606
    Fax: 212-689-1213

  • The National Breast Cancer Coalition/Fund
    1101 17th Street Northwest
    Suite 1300
    Washington, DC 20036
    Toll-free: 800-622-2838
    Telephone: 202-296-7477
    Fax: 202-265-6854

  • The National Coalition for Cancer Survivorship
    1010 Wayne Avenue
    Suite 770
    Silver Spring, MD 20910
    Toll-free: 888-650-9127
    Telephone: 301-650-9127
    Fax: 301-565-9670

  • The Susan G. Komen Breast Cancer Foundation
    5005 LBJ Freeway
    Suite 250
    Dallas, TX 75244
    Toll-free: 877-465-6636
    Telephone: 972-855-1600
    Fax: 972-855-1605

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support