Children's Brain Disease Foundation
Parnassus Heights Medical Building, Suite 900
Telephone: 415-665-3003 Fax: 415-665-3003 E-mail: firstname.lastname@example.org
Hide and Seek Foundation for Lysosomal Storage Disease Research
4123 Lankershim Boulevard
6475 East Pacific Coast Highway
Telephone: 877-621-1122 Fax: 866-215-8850 E-mail: email@example.com Website: http://www.hideandseek.org
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Toll-free: 800-90-NTSAD (906-8723) Telephone: 617-277-4463 Fax: 617-277-0134 E-mail: firstname.lastname@example.org Website: http://www.ntsad.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.