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Genetic and Rare Diseases Information Center (GARD)

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Caroli disease

Other Names for this Disease
  • Caroli disease isolated
  • Congenital polycystic dilatation of intrahepatic bile ducts
  • Cystic dilatation of the intrahepatic biliary tree
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Your Questions Answered

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  • I was diagnosed with Caroli disease thirteen years ago when I was 26.  I had part of my liver removed in an effort to alleviate my symptoms. A few years later the pain started coming back. I have also had endoscopic retrograde cholangiopancreatography (ERCP) done to remove gallstones that were found in my ducts. The crazy thing about this is that I had my gallbladder removed 16 years ago. I have searched the Internet trying to find answers about this rare disease. How can it be treated? Click here for answer