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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Cyclic neutropenia


Other Names for this Disease
  • Cyclic hematopoiesis
  • Neutropenia cyclic
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Research


Patient Registry

  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
  • Severe Chronic Neutropenia International Registry
    Plaza 600 Building
    600 Stewart Street
    Suite 1503
    Seattle, WA 98101
    Phone: (206)543-9749
    Fax: (206)543-3668
    Toll-free: (800)726-4463
    Email: Registry@u.washington.edu
    Web: http://www.depts.washington.edu/registry/ or http://www.neutropenia.ca/community/scnir.html

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.