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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Epidermolysis bullosa

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Treatment

Management Guidelines

  • Project OrphanAnesthesia is a project whose aim is to create peer-reviewed, readily accessible guidelines for patients with rare diseases and for the anesthesiologists caring for them. The project is a collaborative effort of the German Society of Anesthesiology and Intensive Care, Orphanet, the European Society of Pediatric Anesthesia, anesthetists and rare disease experts with the aim to contribute to patient safety.

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Epidermolysis bullosa. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
Other Names for this Disease
  • EB
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