DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareConnect is an online social network for patients and families to connect with one another and share their experience living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders). Click on the link above to view the community for Epidermolysis bullosa.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
American Autoimmune Related Diseases Association (AARDA)
22100 Gratiot Avenue Eastpointe
Toll-free: 800-598-4668 Telephone: 586-776-3900 Fax: 586-776-3903 E-mail: firstname.lastname@example.org Website: http://www.aarda.org/