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Genetic and Rare Diseases Information Center (GARD)

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Fibrous dysplasia

Other Names for this Disease
  • Fibrous dysplasia of bone
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Your Questions Answered

3 question(s) from the public on this disease have been answered. Submit a new question.
  • I am interested in reading the most up-to-date research on the use of bisphosphonate therapy in treating adult PFD. What I have found in my search so far is that while it does seem to treat pain associated with PFD, it doesn't actually stop the progression of the condition.  Also, I understand that long-term (over 3 years) use of bisphosphonates actually makes bones subject to fracture.  So I was just looking for some answers. Click here for answer

  • My one year old daughter has been diagnosed with fibrous dysplasia (FD). FD has been found on her left leg in both her tibia and fibula bones. Is there any cure for this condition? Click here for answer

  • I would like to learn more about fibrous dysplasia, particularly of the skull. Can you help? Click here for answer