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Genetic and Rare Diseases Information Center (GARD)

Other Names for this Disease
  • Fra(X) syndrome
  • FRAXA syndrome
  • FXS
  • Marker X syndrome
  • Martin-Bell syndrome
More Names
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Organizations Supporting this Disease

  • Developmental Delay Resources (DDR)
    5801 Beacon Street
    Pittsburgh, PA 15217
    Toll-free: 800-497-0944
    Fax: 412-422-1374

  • FRAXA Research Foundation
    10 Prince Place
    Newburyport, MA 01950
    Telephone: (978) 462-1866

  • National Fragile X Foundation
    PO Box 190488
    San Francisco, CA 94119
    Toll-free: 800-688-8765
    Telephone: 925-938-9300
    Fax: 925-938-9315

  • The Fragile X Society
    Road End House
    6 Stortford Road
    Great Dunmow, Essex, CM6 1DA
    United Kingdom
    Telephone: 00 44 (0)1371 875100
    Fax: 00 44 (0)1371 859915

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support