Acute graft versus host disease
- Acute GVHD
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ORDR Co-Sponsored Conferences
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
Outcomes Database in Hematopoietic Cell Transplantation and Cellular Therapy for Autoimmune Diseases, Friday, April 19, 2013 - Saturday, April 20, 2013
Location: Froedtert and Medical College of Wisconsin, Milwaukee, WI
Description: The aim of this NIH workshop is to break the stalemate and facilitate interdisciplinary collaboration by creating functional clinical research teams on the national level who can then create a momentum for progress in this area of substantial unmet need and high promise. The CIBMTR infrastructure, which is currently cancer-focused, can be easily adapted to collect AID-specific data
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
Workshop on Clinical Trial Endpoints for Acute Graft-versus-Host Disease (Acute GVHD) after Allogeneic Hematopoietic Stem Cell Transplantation (HCT), and the Identification of Future Scientific Directions Needed to the Prevention of Acute GVHD, Tuesday, May 19, 2009 - Wednesday, May 20, 2009
Location: Bethesda, MD
Description: The primary focus was on validated endpoints that are ready for incorporation into clinical trials now or in the near future and on methods to address confounding issues unique to studies of acute GVHD. These will be used by the NHLBI-sponsored Blood and Marrow Transplant Clinical Trials Network (BMT CTN), and the materials will be made available publicly so that the endpoints may also be used by the oncology cooperative groups and corporate sponsors.