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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Hay-Wells syndrome


Other Names for this Disease

  • AEC syndrome
  • Ankyloblepharon ectodermal defects cleft lip/palate
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Cleft Palate Foundation
    1504 East Franklin Street, Suite 102
    Chapel Hill, NC 27514-2820
    Toll-free: 800-242-5338
    Telephone: 919-933-9044
    Fax: 919-933-9604
    E-mail: info@cleftline.org
    Website: http://www.cleftline.org/

  • National Foundation for Ectodermal Dysplasias
    6 Executive Drive
    Suite 2
    Fairview Heights, IL 62258-1360
    Telephone: 618-566-2020
    E-mail: info@nfed.org
    Website: http://nfed.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • AEC syndrome
  • Ankyloblepharon ectodermal defects cleft lip/palate
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.