Hereditary fructose intolerance
Other Names for this Disease
- ALDOB deficiency
- Aldolase B deficiency
- Fructose intolerance, hereditary
- Fructose-1,6-bisphosphate aldolase B deficiency
- Fructose-1-phosphate aldolase deficiency
Your QuestionI have spent hours looking for information about a fructose/sucrose free diet. Everything I have discovered tells you what you can't eat but not much regarding what is permissible. Can you send me a link, diet outline, or any information concerning hereditary fructose intolerance?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Questions on this page
- What is hereditary fructose intolerance (HFI)?
- How is hereditary fructose intolerance treated?
- Is there a resource which provides information about what is permitted in a diet for individuals with hereditary fructose intolerance?
- What specialists can help diagnose and treat hereditary fructose intolerance (HFI)?
The links entitled Fructose Free Diet 1 and Fructose Free Diet 2 may be of particular interest to you.
American Dietetic Association
120 South Riverside Plaza, Suite 2000
Chicago, Illinois 60606-6995
Consumer nutrition information and referrals
Public Web site: http://www.eatright.org/Public/
Since HFI is a genetic condition, we suggest that you contact a genetics clinic to discuss this information with a genetics professional. To find a genetics clinic near you, we recommend contacting your primary doctor for a referral. The following online resources can also help you find a genetics professional in your community:
* GeneClinics - A searchable directory of US and international genetics and prenatal diagnosis clinics. To locate genetics clinics in the United States, go to the following link and click on 'Clinic Directory' to find a genetic service close to you. To locate genetics clinics outside of the United States, go the following link, click on 'Clinic Directory', and click on 'International Clinic Directory Search'.
* ResourceLink - A database of genetics counseling services, searchable by location, name, institution, type of practice, or specialty. Hosted by the National Society of Genetic Counselors.
The American Society of Human Genetics (ASHG) is a professional organization of research and clinical geneticists. The ASHG maintains a database of these geneticists, some of which live outside of the United States. If you are interested in obtaining a list of the geneticists in your country, some of which may only be researchers and may not offer medical care, please visit the following hyperlink, enter 'YOUR COUNTRY'S NAME' in the 'Country' search box, and click on 'Click to Begin Search'.
- Kirmse B. Hereditary fructose intolerance. Medline Plus Web site. May 2, 2007; http://www.nlm.nih.gov/medlineplus/ency/article/000359.htm. Accessed 3/17/2009.
- HFI Treatment. HFI Laboratory at Boston University. http://www.bu.edu/aldolase/HFI/treatment/. Accessed 3/17/2009.