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Genetic and Rare Diseases Information Center (GARD)

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Hereditary spherocytosis

Other Names for this Disease
  • Congenital spherocytic hemolytic anemia
  • Congenital spherocytosis
  • Spherocytic anemia
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Your Questions Answered

4 question(s) from the public on this disease have been answered. Submit a new question.
  • I have hereditary spherocytosis and I have a son that has it too. He had a splenectomy when he was almost 3 and he is 7 now. He is on penicillin every day. I have been told by his doctor (not a hematologist) that he doesn't have to be on the medicine anymore. Is that correct? Also, is there a chance my other unaffected kids can give this disorder to their kids? Click here for answer

  • Is there research that demonstrates the long term effects of removal of spleen and gallbladder in children with hereditary spherocytosis? How do these procedures affect their future health?  What are the chances of this disease being passed to my child's future children? Click here for answer

  • Can Soliris be used to cure hereditary spherocytosis? Click here for answer

  • What causes hereditary spherocytosis? How can I learn about research on this topic? In particular I'm interested in learning more about the role of genetics and possible links to radiation or drug exposure. Click here for answer