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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Huntington disease


Other Names for this Disease

  • HD
  • Huntington's chorea
  • Huntington's disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Treatment

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How might Huntington disease be treated? Can it be cured?

Scientists are trying to understand what the gene mutation actually does to structures in the brain and how it affects the rest of the body.  Therefore, there is no cure for Huntington disease and there is still no known way to stop the disease from getting worse. The goal of treatment is to slow down the course of the disease and help the person function for as long and as comfortably as possible.[1]

The Huntington Disease Society of America (HDSA) Centers of Excellence for Family Services Program helps to create regional Centers that offer clinical care and services for individuals affected by HD and their families. HDSA Centers of Excellence provide comprehensive services through a multidisciplinary health care team. To find a center in your area, you can contact the HDSA organization at (800) 345-HDSA (4372) or click here to go directly to their Web site.

Caregivers for individuals with Huntington disease can find a list of resources on the HDSA Web site at the following link:
http://www.hdsa.org/living-with-huntingtons/family-care/caregivers.html
Last updated: 3/2/2010

References
  1. Huntington Disease. MEDLINEplus. http://www.nlm.nih.gov/medlineplus/huntingtonsdisease.html. Accessed 1/1/1900.


Management Guidelines

  • GeneReviews provides current, expert-authored, peer-reviewed, full-text articles describing the application of genetic testing to the diagnosis, management, and genetic counseling of patients with specific inherited conditions. Click on the link to view the article on this topic.
  • The Hereditary Disease Foundation has a page that posts the "Guidelines for the Molecular Genetics Predictive Test in Huntington's Disease" published in the journal Neurology in 1994. To view the guidelines, visit the link.

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Huntington disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The Huntington Study Group (HSG) is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease (HD).  Click on the link to learn more about research trials that are currently underway.

Medical Products

The medication(s) listed in the table(s) below have been approved by the Food and Drug Administration (FDA) for treatment of this condition. The FDA Office of Orphan Products Development designates "orphan products" for those that treat rare diseases affecting fewer than 200,000 Americans. The table(s) below may not be an exhaustive list of drugs or products used to treat this condition. There may be other products available that are not considered orphan products. To search for all FDA approved drugs, visit Drugs@FDA. You can find orphan products used to treat other conditions by searching the Orphan Drug Product Designation database.


Generic Name Tetrabenazine
Trade Name
(Manufacturer Name)
Xenazine®
(Lundbeck Inc.)
Indication
The FDA has approved this product to be used in this manner.
Treatment of chorea associated with Huntington's disease
More Information about this product Drug Information Portal

Other Names for this Disease
  • HD
  • Huntington's chorea
  • Huntington's disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.