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Genetic and Rare Diseases Information Center (GARD)

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Incontinentia pigmenti

Other Names for this Disease
  • Bloch-Sulzberger syndrome
  • Incontinentia pigmenti type 2 (formerly)
  • Incontinentia pigmenti, familial male-lethal type
  • IP
  • IP2 (formerly)
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.


Organizations Supporting this Disease

Social Networking Websites

  • is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • The Incontinentia Pigmenti International Foundation maintains a Family Chat Room where you can connect with other families with loved ones with IP. Click on the link above to visit the chat room.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support