Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Interstitial cystitis

*

* Not a rare disease

Other Names for this Disease
  • Hunner's patch
  • Hunner's ulcer
  • IC
  • Painful bladder syndrome
  • PBS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Autoimmune Related Diseases Association (AARDA)
    22100 Gratiot Avenue Eastpointe
    East Detroit, MI 48201-2227
    Toll-free: 800-598-4668
    Telephone: 586-776-3900
    Fax: 586-776-3903
    E-mail: aarda@aarda.org
    Website: http://www.aarda.org/

  • Interstitial Cystitis Association
    100 Park Avenue, Suite 108A
    Rockville, MD 20850
    Toll-free: 1–800–HELP–ICA (1–800–435–7422)
    Telephone: 301–610–5300
    Fax: 301–610–5308
    E-mail: ICAmail@ichelp.org
    Website: http://www.ichelp.org

  • Urology Care Foundation
    1000 Corporate Boulevard
    Linthicum, MD 21090
    Toll-free: 1–800–828–7866
    Telephone: 410–689–3990
    Fax: 410–689–3998
    E-mail: info@urologycarefoundation.org
    Website: http://www.urologyhealth.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Hunner's patch
  • Hunner's ulcer
  • IC
  • Painful bladder syndrome
  • PBS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.