Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Kearns Sayre syndrome


Other Names for this Disease
  • Chronic progressive external ophthalmoplegia with myopathy
  • CPEO with myopathy
  • CPEO with ragged red fibers
  • KSS
  • Mitochondrial cytopathy
More Names
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • MitoAction
    14 Pembroke Street
    Medford, MA 02155
    Toll-free: 888-648-6228
    E-mail: info@mitoaction.org
    Website: http://www.mitoaction.org

  • Mitochondria Research Society
    Keshav K. Singh, Ph.D.
    Professor of Oncology
    Editor-in-Chief, Mitochondrion
    Department of Cancer Genetics
    Roswell Park Cancer Institute
    BLSC Building, Room # 3-316
    Elm and Carlton Streets
    Buffalo, NY 14263
    Telephone: 716-907-4349
    Fax: 716-845-1047
    E-mail: keshav@mitoresearch.org
    Website: http://www.mitoresearch.org

  • United Mitochondrial Disease Foundation
    8085 Saltsburg Road, Suite 201
    Pittsburgh, PA 15239
    Toll-free: 888-317-8633
    Telephone: 412-793-8077
    Fax: 412-793-6477
    E-mail: info@umdf.org
    Website: http://www.umdf.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support