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Genetic and Rare Diseases Information Center (GARD)

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Your Question

Our son has had surgery and a tumor was found on the right colon. It was removed and first thought to be a gastrointestinal stromal tumor (GIST), but because of CD117 and CD34 testing we were told it was leiomyosarcoma. We have been to 2 oncologists, one says chemo and the other says chemo is not effective for this type. We are totally confused.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How might leiomyosarcoma be treated?

Treatment of leiomyosarcoma varies depending on the location and stage of the cancer. Surgery is typically the first choice for treatment, however, chemotherapy, radiation therapy, and hormonal therapy may also be used to treat leiomyosarcoma.[1]

Additional information on the treatment of intestinal leiomyosarcoma is available from eMedicine. You may need to register to view this medical textbook, but registration is free
Last updated: 8/3/2010

What is the prognosis for leiomyosarcoma?

The prognosis for people with leiomyosarcoma depends on various factors, including tumor location, size, and type, as well as the extent of spread. Some patients with low grade tumors or with tumors that have not spread beyond Stage I have had excellent prognoses. There are numerous long term survivors from this group. In general, high-grade tumors that have spread widely throughout the body have less favorable survival rates.[2]
Last updated: 8/3/2010