Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Oculopharyngeal muscular dystrophy


Other Names for this Disease
  • Muscular dystrophy, oculopharyngeal
  • OPMD
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • European Alliance of Neuromuscular Disorders Associations
    MDG Malta 4
    Gzira Road
    Gzira, Intl GAR 04
    Malta
    Telephone: 003-56 -21 346688
    E-mail: eamda@hotmail.com
    Website: http://www.eamda.net

  • The Society for Muscular Dystrophy Information International
    P.O. Box 7490, Bridgewater
    Nova Scotia, B4V 2X6
    Canada
    Telephone: 902-685-3961
    Fax: 902-685-3962
    E-mail: smdi@auracom.com
    Website: http://www.nsnet.org/smdi/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support