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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Progressive hemifacial atrophy


Other Names for this Disease

  • Hemifacial atrophy, progressive
  • Parry-Romberg syndrome
  • Romberg hemi-facial atrophy
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Treatment

Clinical Trials & Research for this Disease

  • The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
  • ClinicalTrials.gov lists trials that are studying or have studied Progressive hemifacial atrophy. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.
Other Names for this Disease
  • Hemifacial atrophy, progressive
  • Parry-Romberg syndrome
  • Romberg hemi-facial atrophy
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.