Association Européenne contre les Leucodystrophies (ELA)
European Leukodystrophy Association
53 cours Léopold
BP 267 - 54005
Telephone: 333 83 30 93 34 Fax: 333 83 30 00 68 E-mail: firstname.lastname@example.org Website: http://www.ela-asso.com
United Leukodystrophy Foundation (ULF)
2304 Highland Drive
Toll-free: 800-728-5483 Telephone: 815-895-3211 Fax: 815-895-2432 E-mail: email@example.com Website: http://www.ulf.org/
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.