Genetic and Rare Diseases Information Center (GARD)
regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
- The American Porphyria Foundation offers a document that includes information about porphyria, types, testing, and treatment with Panhematin®. Click the "document" link above to view these guidelines.
Clinical Trials & Research for this Disease
- ClinicalTrials.gov lists trials that are studying or have studied Protoporphyria. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.