Pulmonary arterial hypertension
Other Names for this Disease
- Familial pulmonary arterial hypertension
- Hereditary pulmonary arterial hypertension
- Heritable pulmonary arterial hypertension
- Idiopathic pulmonary arterial hypertension
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Winter 2014
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Grover Conference: Risk Factors in Pulmonary Hypertension: Gender, Sex Hormones, Obesity, and Novel Genetic Influences, Wednesday, September 07, 2011 - Sunday, September 11, 2011
Location: Lost Valley Ranch Conference Center, Sedalia, CO
Description: At the conclusion of this conference, attendees will be expected to: (1) identify key factors increasing disease penetrance in females, (2) identify key factors increasing disease penetrance in carriers of the BMPR2+/- mutation, (3) identify risk factors that can be targeted pharmacologically as novel therapeutic strategies, and (4) assess the relevance of genetic and environmental risk factors on the responsiveness of patients to current and emerging therapies.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
Strategic Planning for Pulmonary Vascular Disease Research , Monday, March 08, 2010 - Tuesday, March 09, 2010
Location: Bethesda, Maryland
Description: Formulation of strategy for advancing clinical research in pulmonary arterial hypertension (PAH) was a high priority of this conference. Plans are to make participants' recommendations available via publication in a peer-reviewed journal. Initiatives on future research were considered.