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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Scleromyxedema


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Organizations


Organizations Supporting this Disease

  • Scleromyxedema Survivors
    C/O Phyllis Kay Phillips
    1704 Lower Millstone Lane
    Salisbury, MD 21801
    Telephone: 410-742-7843

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
  • Visit the Scleromyxedema group on Facebook.
  • A Scleromyxedema Yahoo group is available as an online community for people with scleromyxedema.

Organizations Providing General Support