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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Sezary syndrome


Other Names for this Disease
  • Sézary syndrome
  • Sezary's lymphoma
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Your Question

Can Sezary syndrome be cured?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Can Sezary syndrome be cured?

Sézary syndrome is difficult to cure. Treatment is usually palliative, with the intention of relief of symptoms and improvement in the quality of life. Patients may live many years with the disease.[1]
Last updated: 2/8/2011

How might Sezary syndrome be treated?

Treatment options for patients with Sézary syndrome include:[2]

These types of treatments are aimed at producing remissions and improving symptoms. Treatment, therefore, is considered palliative for most patients. Survival in excess of 8 years is common. Patients with Sezary syndrome may benefit from participation in clinical trials evaluating new approaches to treatment.[2]

More details about treatment of Sezary syndrome can be accessed by clicking here.

Last updated: 4/30/2012

How can I learn about research opportunities for individuals with Sezary syndrome?

ClinicalTrials.gov lists trials that are studying or have studied Sezary syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.  

Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.

The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, click on the link and enter the disease name in the 'Terms Search' box. Then click 'Submit Query'.
Link: http://projectreporter.nih.gov/reporter.cfm

Last updated: 2/8/2011

References