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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Susac syndrome


Other Names for this Disease
  • RED-M
  • Retinocochleocerebral vasculopathy
  • Retinopathy-encephalopathy-deafness associated with microangiopathy
  • SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome
  • SICRET syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Autoimmune Related Diseases Association (AARDA)
    22100 Gratiot Avenue Eastpointe
    East Detroit, MI 48201-2227
    Toll-free: 800-598-4668
    Telephone: 586-776-3900
    Fax: 586-776-3903
    E-mail: aarda@aarda.org
    Website: http://www.aarda.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • Visit the Susac Syndrome group on Facebook.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • RED-M
  • Retinocochleocerebral vasculopathy
  • Retinopathy-encephalopathy-deafness associated with microangiopathy
  • SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome
  • SICRET syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.