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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Syringomyelia


See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Syringomyelia Alliance Project, Inc.
    PO Box 1586
    Longview, TX 75606-1586
    Telephone: 800-272-7282
    Fax: 903-757-7456
    E-mail: info@ASAP.org
    Website: http://www.asap.org

  • C&S Patient Education Foundation
    320 Osprey Court
    Wexford, PA 15090
    Telephone: 724-940-0116

  • Chiari & Syringomyelia Foundation, Inc.
    c/o Paul Farrell
    333 Earle Ovington Blvd. Suite 701
    Uniondale, NY 11553
    Telephone: 516-228-3565
    Website: http://www.csfinfo.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.