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Organizations Supporting this Disease
C&S Patient Education Foundation
320 Osprey Court
Wexford, PA 15090
Chiari & Syringomyelia Foundation, Inc.
c/o Paul Farrell
333 Earle Ovington Blvd. Suite 701
Uniondale, NY 11553
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.