Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.


Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Neurofibromatosis type 1

Other Names for this Disease
  • NF1
  • Recklinghausen's disease
  • Type 1 neurofibromatosis
  • Von Recklinghausen disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

I have neurofibromatosis type 1, and in the last couple of years I have developed severe skin itching. Do you think the itching has anything to do with NF1?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Is skin itching a symptom of neurofibromatosis type 1?

Skin itching, or pruritus, can be a symptom of neurofibromatosis type 1. Neurofibromas under the skin can be very itchy, especially when they are growing. This intense itchiness may interfere with sleep and other daily activities.[1] A type of antihistamine medication called ketotifen has been effective in treating this symptom.[1][2]

Last updated: 6/8/2012