Von Willebrand disease
* Not a rare disease
Other Names for this Disease
- Von Willebrand factor, deficiency
- Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, GARD's How to Find a Disease Specialist fact sheet provides several ways to identify healthcare professionals who have experience with a particular condition. Click on the link to access this resource and learn more.
- The Division of Blood Disorders at the Centers for Disease Control and Prevention has created specialized programs for persons with blood disorders and their families. One of the activities of the division involves the collaboration with networks of specialized health care centers throughout the United States. To locate treatment centers, organizations, and staff that are part of the federally funded network, click on the link.
- The Parent Technical Assistance Center Network provides a list of the Parent Training and Information Centers in each state. These centers are funded by the United States Department of Education to provide early intervention and special education information and training to parents of children with disabilities from birth to age 26. Click on the link to find the Parent Center in your state.