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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Wolf-Hirschhorn syndrome


Other Names for this Disease

  • 4p syndrome
  • Chromosome 4p syndrome
  • Distal deletion 4p
  • Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
  • WHS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

What is the life expectancy for someone with Wolf-Hirschhorn syndrome?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the life expectancy for someone with Wolf-Hirschhorn syndrome?

The life expectancy for individuals with Wolf-Hirschhorn syndrome is unknown. Recent figures indicate that the mortality rate is likely lower than once thought and many individuals, in the absence of severe heart defects, chest infections or uncontrollable seizures, survive into adulthood.[1][2] The 4p- Support Group reports that their oldest member was born in 1949. They also have several  members in their 30s and 40s.[1]
Last updated: 9/21/2011

References
Other Names for this Disease
  • 4p syndrome
  • Chromosome 4p syndrome
  • Distal deletion 4p
  • Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
  • WHS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.