Other Names for this Disease
- 4p syndrome
- Chromosome 4p syndrome
- Distal deletion 4p
- Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
Your QuestionWhat is the life expectancy for someone with Wolf-Hirschhorn syndrome?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
The long-term outlook (prognosis) for people with Wolf-Hirschhorn syndrome (WHS) depends on the specific features and severity in each affected person. The typical life expectancy is unknown. Research indicates that the mortality rate is likely lower than once thought. Many people, in the absence of severe heart defects, chest infections or uncontrollable seizures, survive into adulthood.
Last updated: 12/4/2014
- General 4p- Info. 4p- Support Group. 2011; http://4p-supportgroup.org/general-info/. Accessed 9/21/2011.
- The Wolf-Hirschhorn Syndrome 4p- Booklet. Wolf Hirschhorn Syndrome Trust. http://www.whs4pminus.co.uk/downloads/Microsoft%20Word%20-%20Wolf%20Hirschhorn%20Syndrome%204p-%20Booklet%202006%20Portrait.pdf. Accessed 9/21/2011.