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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Wolf-Hirschhorn syndrome


Other Names for this Disease

  • 4p syndrome
  • Chromosome 4p syndrome
  • Distal deletion 4p
  • Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
  • WHS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

What is the life expectancy for someone with Wolf-Hirschhorn syndrome?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the long-term outlook for people with Wolf-Hirschhorn syndrome?

The long-term outlook (prognosis) for people with Wolf-Hirschhorn syndrome (WHS) depends on the specific features and severity in each affected person. The typical life expectancy is unknown. Research indicates that the mortality rate is likely lower than once thought. Many people, in the absence of severe heart defects, chest infections or uncontrollable seizures, survive into adulthood.[1][2]
Last updated: 12/4/2014

References
Other Names for this Disease
  • 4p syndrome
  • Chromosome 4p syndrome
  • Distal deletion 4p
  • Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
  • WHS
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.