Other Names for this Disease
- 4p syndrome
- Chromosome 4p syndrome
- Distal deletion 4p
- Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
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Your QuestionWhat is the life expectancy for someone with Wolf-Hirschhorn syndrome?
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The life expectancy for individuals with Wolf-Hirschhorn syndrome is unknown. Recent figures indicate that the mortality rate is likely lower than once thought and many individuals, in the absence of severe heart defects, chest infections or uncontrollable seizures, survive into adulthood. The 4p- Support Group reports that their oldest member was born in 1949. They also have several members in their 30s and 40s.
Last updated: 9/21/2011
- General 4p- Info. 4p- Support Group. 2011; http://4p-supportgroup.org/general-info/. Accessed 9/21/2011.
- The Wolf-Hirschhorn Syndrome 4p- Booklet. Wolf Hirschhorn Syndrome Trust. http://www.whs4pminus.co.uk/downloads/Microsoft%20Word%20-%20Wolf%20Hirschhorn%20Syndrome%204p-%20Booklet%202006%20Portrait.pdf. Accessed 9/21/2011.