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Genetic and Rare Diseases Information Center (GARD)

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Wolf-Hirschhorn syndrome

Other Names for this Disease
  • 4p syndrome
  • Chromosome 4p syndrome
  • Distal deletion 4p
  • Microcephaly, IUGR, Hypertelorism, Ptosis, iris coloboma, hooked nose, external ear dysplasia, psychomotor retardation
  • WHS
More Names
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Your Question

What is the life expectancy for someone with Wolf-Hirschhorn syndrome?

Our Answer

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What is the life expectancy for someone with Wolf-Hirschhorn syndrome?

The life expectancy for individuals with Wolf-Hirschhorn syndrome is unknown. Recent figures indicate that the mortality rate is likely lower than once thought and many individuals, in the absence of severe heart defects, chest infections or uncontrollable seizures, survive into adulthood.[1][2] The 4p- Support Group reports that their oldest member was born in 1949. They also have several  members in their 30s and 40s.[1]
Last updated: 9/21/2011