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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Xeroderma pigmentosum


Other Names for this Disease
  • Xeroderma pigmentosa
  • XP
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Research


Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Xeroderma pigmentosum. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, click on the link and enter the disease name in the "Terms Search" box. Then click "Submit Query".

Patient Registry

  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
  • Xeroderma Pigmentosum Registry 
    Univ of Medicine and Dentistry of NJ
    Department of Path
    Med Sci Bldg Rm C-520
    185 S Orange Ave
    Newark NJ 07103-2714
    Phone #: 973-972-4405

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.