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ORDR Co-Sponsored Conferences
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
Rational Approaches to the Management and Control of Neurocysticercosis Based on Recent Advances, Wednesday, October 23, 2013 - Thursday, October 24, 2013
Location: Lima, Peru
Description: The goals of this conference are to incorporate recent published and unpublished research into rational approaches to the treatment and control of neurocysticercosis.
Calcific Neurocysticercosis, Inflammation and Epileptogenesis , Wednesday, October 23, 2013 - Thursday, October 24, 2013
Location: Lima, Peru
Description: The anticipated goals of the proposed conference are to incorporate recent published and unpublished research into rational approaches to the treatment and control of neurocysticercosis.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Formation of a Consortium to Develop Common Protocols and Procedure for the Study of Neurocysticercosis in North America, Thursday, November 04, 2010
Location: Atlanta Hilton, Atlanta, GA
Description: This planning meeting addressed the following goals: (1) development of a database and registry for neurocysticercosis seen in the United States; (2) formation of a consortium of a minimum of 6 sites and maximum of 12 sites willing and able to participate; (3) determination of what studies can be performed given the types of patient seen; (4) creation of an outline of protocols that all sites can reasonably follow; and (5) determination of administrative details. The plan or protocol developed will be presented to others who would find benefit in taking part in a study protocol.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
Treatment of Neurocysticercosis, Wednesday, June 22, 2005 - Thursday, June 23, 2005
Location: El Pueblo Hotel, Lima, Peru
Description: Cysticercosis, the most common cause of adult onset epilepsy in the third world, is due to infection with the cystic larval form of the intestinal-dwelling tapeworm, <i>Taenia solium</i>. A conference on the treatment of neurocysticercosis was particularly opportune because the recent publication in the <i>New England Journal of Medicine</i> of a blinded, controlled randomized treatment trial of parenchymal cysticercosis unequivocally demonstrated a medical benefit of treatment. This study added to a body of evolving evidence that treatment is medically indicated. A conference to reassess the scientific bases of treatment, to determine what is known and not known, and to design trials or studies to answer questions was timely. The goals of this scientific conference were to critically evaluate the knowledge upon which treatment decisions are based in the various forms of cysticercosis; to define gaps in knowledge; and to suggest studies, trials, or approaches that are required to answer the most pressing questions. NEUROLOGY 2006;67:1120–1127
Workshop on Neurocysticercosis, Tuesday, April 15, 1997
Location: Boston, MA