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Genetic and Rare Diseases Information Center (GARD)

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Henoch-Schonlein purpura

Other Names for this Disease
  • Anaphylactoid purpura
  • Henoch Schonlein purpura
  • Purpura, Schonlein-Henoch
  • Vascular purpura
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  • I was first diagnosed with Henoch-Schonlein purpura at age 10.  The disease has been occurring more frequently and worsening over the past 10 years.  It is my understanding that this condition is not as common in adults as it is in children.  I am treated with steroids when needed, but I am trying to find out if there are any other effective treatments for this condition.   Do you know of any treatment alternatives, preventions, or research studies that may be helpful?  Have there been any genetic studies?  Do I need to fear that my children will get this disease? Click here for answer