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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Autoimmune polyglandular syndrome type 1


Other Names for this Disease
  • APS 1
  • Autoimmune polyendocrine syndrome type 1
  • Autoimmune polyendocrinopathy syndrome type 1
  • Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy (APECED)
  • Hypoadrenocorticism with hypoparathyroidism and superficial moniliasis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • American Autoimmune Related Diseases Association (AARDA)
    22100 Gratiot Avenue Eastpointe
    East Detroit, MI 48201-2227
    Toll-free: 800-598-4668
    Telephone: 586-776-3900
    Fax: 586-776-3903
    E-mail: aarda@aarda.org
    Website: http://www.aarda.org/

  • National Adrenal Diseases Foundation
    505 Northern Boulevard
    Great Neck, NY 11021
    Telephone: 516-487-4992
    E-mail: nadfsupport@nadf.us
    Website: http://www.nadf.us/

Social Networking Websites

  • Contact a Family is a UK-wide charity providing advice, information and support to individuals affected by various health conditions. They enable parents, families, and individuals to get in contact with others, on a local, national, and international basis. Each year they reach at least 275,000 families. Click on Contact a Family to view the Making Contact page for autoimmune polyendocrineopathy syndrome type 1.
  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • APS 1
  • Autoimmune polyendocrine syndrome type 1
  • Autoimmune polyendocrinopathy syndrome type 1
  • Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy (APECED)
  • Hypoadrenocorticism with hypoparathyroidism and superficial moniliasis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.