Other Names for this Disease
- MASS phenotype
- Mitral valve-aorta-skeleton-skin syndrome
- Overlap connective tissue disease
On this page
International Foundation of Marfan Syndrome Organizations
C/O National Marfan Foundation
22 Manhassett Avenue
Port Washington, NY 11050
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.