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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Spinal muscular atrophy with respiratory distress 1


Other Names for this Disease

  • DSMA1
  • HMN VI
  • HMN6
  • Neuronopathy, distal hereditary motor, type VI
  • Neuronopathy, severe infantile axonal, with respiratory failure
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Families of Spinal Muscular Atrophy
    925 Busse Road
    Elk Grove, IL 60007
    Toll-free: 800-886-1762
    Telephone: 847-367-7620
    Fax: 847-367-7623
    E-mail: info@fsma.org
    Website: http://www.curesma.org

  • Spinal Muscular Atrophy Foundation
    888 Seventh Avenue
    Suite 400
    New York, NY 10019
    Toll-free: 877-FUND-SMA (877-386-3762)
    Telephone: 646-253-7100
    Fax: 212-247-3079
    E-mail: info@smafoundation.org
    Website: http://www.smafoundation.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • DSMA1
  • HMN VI
  • HMN6
  • Neuronopathy, distal hereditary motor, type VI
  • Neuronopathy, severe infantile axonal, with respiratory failure
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.