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Genetic and Rare Diseases Information Center (GARD)

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Gastrointestinal Stromal Tumors

Other Names for this Disease
  • Gastrointestinal Stromal Sarcoma
  • GIST
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Gastrointestinal stromal tumors are a type of soft tissue sarcoma (tumor) that usually begins in cells in the wall of the stomach, intestines, or rectum. These tumors may be noncancerous or cancerous. They can affect adults, adolescents, or children.  It is estimated that around 5,000 new cases of gastrointestinal stromal tumors are diagnosed in the United States each year.
Last updated: 4/27/2010


  1. General Information About Adult Soft Tissue Sarcoma. National Cancer Institute. September 10, 2009; Accessed 4/27/2010.
Your Questions Answered
by the Genetic and Rare Diseases Information Center

1 question(s) from the public on Gastrointestinal Stromal Tumors have been answered. See questions and answers. You can also submit a new question.

Basic Information

  • The American Cancer Society (ACS) has developed a detailed guide on GIST. To access this guide, visit the ACS link.
  • Genetics Home Reference (GHR) contains information on Gastrointestinal Stromal Tumors. This website is maintained by the National Library of Medicine.
  • Pediatric provides medical information and builds an international support network for those with pediatric and wild-type gastrointestinal stromal tumors and funds research to find a cure for this cancer.
  • The Global GIST Network is a directory of resources available to people with Gastrointestinal Stromal Tumors and their families. This directory serves to help people throughout the world find local resources and support.  
  • The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders. Click on the link to view information on this topic.

In Depth Information

  • The Online Mendelian Inheritance in Man (OMIM) is an catalog of human genes and genetic disorders. Each entry has a summary of related medical articles. It is meant for health care professionals and researchers. OMIM is maintained by Johns Hopkins University School of Medicine. 
  • PubMed is a searchable database of medical literature and lists journal articles that discuss Gastrointestinal Stromal Tumors. Click on the link to view a sample search on this topic.
  • The GIST Web page provides up-to-date information about the latest news related to GIST. Click on the link above to view this resource.

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