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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Autoimmune lymphoproliferative syndrome


Other Names for this Disease

  • ALPS
  • Autoimmune lymphoproliferative syndrome type 1, autosomal dominant
  • Canale-Smith syndrome
  • FAS deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Canadian Immunodeficiencies Patient Organization (CIPO)
    362 Concession Road 12
    RR #2
    Hastings Ontario K0L 1Y0
    Canada
    Telephone: 877-262-2476 (toll-free)
    Fax: 866-942-7651 (toll-free)
    E-mail: info@cipo.ca
    Website: http://cipo.ca

  • International Patient Organization for Patients with Primary Immunodeficiencies
    Firside Main Road
    Downderry
    Cornwall PL11 3LE
    United Kingdom
    Telephone: 44-01503-250-668
    E-mail: Info@ipopi.org
    Website: http://www.ipopi.org/

  • Jeffrey Modell Foundation/National Primary Immunodeficiency Resource Center
    747 Third Avenue
    New York, NY 10017
    Toll-free: 866-INFO-4-PI (1-866-463-6474)
    Telephone: 212-819-0200
    Fax: 212-764-4180
    E-mail: info@jmfworld.org
    Website: http://www.info4pi.org/

  • Primary Immunodeficiency Association (UK)
    Alliance House
    12 Caxton Street
    London, SW1H 0QS
    United Kingdom
    Telephone: +44 (0) 20 7 976 7640
    Fax: +44 (0) 20 7 976 7641
    E-mail: info@pia.org.uk
    Website: http://www.pia.org.uk/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

  • American Autoimmune Related Diseases Association (AARDA)
    22100 Gratiot Avenue Eastpointe
    East Detroit, MI 48201-2227
    Toll-free: 800-598-4668
    Telephone: 586-776-3900
    Fax: 586-776-3903
    E-mail: aarda@aarda.org
    Website: http://www.aarda.org/

  • Genetic Alliance
    4301 Connecticut Avenue NW
    Suite 404
    Washington, DC 20008-2369
    Telephone: 202-966-5557
    Fax: 202-966-8553
    E-mail: info@geneticalliance.org
    Website: http://www.geneticalliance.org/

  • National Organization for Rare Disorders (NORD)
    55 Kenosia Avenue
    PO Box 1968
    Danbury, CT 06813-1968
    Toll-free: 800-999-6673 (voicemail only)
    Telephone: 203-744-0100
    TTY: 203-797-9590
    Fax: 203-798-2291
    E-mail: orphan@rarediseases.org
    Website: http://www.rarediseases.org

Other Names for this Disease
  • ALPS
  • Autoimmune lymphoproliferative syndrome type 1, autosomal dominant
  • Canale-Smith syndrome
  • FAS deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.