Mannosidosis, beta A, lysosomal
Other Names for this Disease
- Beta-mannosidase deficiency
- Lysosomal beta-mannosidase deficiency
- The Lysosomal Disease Network is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with this condition through research. The Lysosomal Disease Network has a registry for patients who wish to be contacted about clinical research opportunities.
For more information on the registry see: http://rarediseasesnetwork.epi.usf.edu/registry/index.htm