Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Print friendly version

Osteogenesis imperfecta type 1


Other Names for this Disease

  • OI type 1
  • Osteogenesis imperfecta tarda
  • Osteogenesis imperfecta with blue sclerae
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Canadian Osteogenesis Imperfecta Society
    128 Thornhill Crescent
    Chatham, Ontario, Canada, N7L 4M3
    Canada
    Telephone: 519-436-0025

  • Children's Brittle Bone Foundation
    7701 95th Street
    Pleasant Prairie, WI 53158
    Telephone: 866-694-2223
    Fax: 262-947-0724
    E-mail: info@cbbf.org
    Website: http://www.cbbf.org/

  • Osteogenesis Imperfecta Foundation
    804 West Diamond Avenue, Suite 210
    Gaithersburg, MD 20878
    Toll-free: 800-981-2663
    Telephone: 301-947-0083
    Fax: 301-947-0456
    E-mail: bonelink@oif.org
    Website: http://www.oif.org

  • The Brittle Bone Society
    30 Guthrie Street
    Dundee
    DD1 5BS
    United Kingdom
    Telephone: (+44) 01382- 204446
    Fax: (+44) 01382- 206771
    E-mail: bbs@brittlebone.org
    Website: http://www.brittlebone.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog¬†that collects¬†firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • OI type 1
  • Osteogenesis imperfecta tarda
  • Osteogenesis imperfecta with blue sclerae
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.