Osteogenesis imperfecta type 4
Other Names for this Disease
- OI type 4
- OI type IV
- Osteogenesis imperfecta with normal sclerae
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Assessing the Impact of Osteogenesis Imperfecta on Non-Skeletal Systems, Wednesday, April 18, 2012 - Friday, April 20, 2012
Location: Sheraton Gateway Suites, Rosemont, IL
Description: This meeting will focus on the impact of abnormal collagen on health in an effort to broaden professional awareness of the full spectrum of issues faced by persons with OI as they age. The goals are: 1)-to review current knowledge regarding the impact of OI on a wide range of bodily systems during the aging process, 2)-identify major information gaps, 3)-make recommendations to expand the OI research agenda. A Workshop Report will be compiled following the meeting in order to share these findings with health professionals and the OI community.
Improving Musculoskeletal Outcomes for Individuals with Osteogenesis Imperfecta, Wednesday, April 07, 2010 - Friday, April 09, 2010
Location: Sheraton Gateway Suites, Rosemont, Illinois
Description: The goals of this workshop were to (1) assess the state of knowledge regarding the musculoskeletal aspects of aging with osteogenesis imperfecta (OI); (2) explore the potential for new diagnostic and therapeutic techniques for OI; and (3) build a consensus on essential measures for documenting OI treatment outcomes.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.