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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Lenz microphthalmia syndrome


Other Names for this Disease
  • Lenz dysplasia
  • MAA (formerly)
  • MCOPS1
  • Microphthalmia Lenz type
  • Microphthalmia or anophthalmos with associated anomalies (formerly)
More Names
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Organizations


Organizations Supporting this Disease

  • American Academy of Ophthalmology
    P.O. Box 7424
    San Francisco, CA 94120-7424
    Telephone: 415-56-8500
    Fax: 415-561-8533
    Website: http://www.aao.org/

  • Foundation Fighting Blindness
    7168 Columbia Gateway Drive, Suite 100
    Columbia, MD 21046
    Toll-free: 800-683-5555
    Telephone: 410-423-0600 (local)
    TTY: 800-683-5551
    E-mail: info@fightblindness.org
    Website: http://www.blindness.org

  • International Children's Anophthalmia Network (ICAN)
    c/o Center for Developmental Medicine and Genetics
    5501 Old York Road Genetics
    Levy 2
    West Philadelphia, PA 19141
    Toll-free: 800-580-4226
    Telephone: 215-456-8722
    E-mail: ican@anophthalmia.org
    Website: http://www.anophthalmia.org

  • MACS - The Micro and Anophthalmic Children's Society
    MACS (Registered Office)
    PO Box 92
    Holyhead
    LL65 9AW
    United Kingdom
    Telephone: 0800 169 8088
    E-mail: http://www.macs.org.uk/contact-us.html
    Website: http://www.macs.org.uk/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support