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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Beta-thalassemia


Other Names for this Disease
  • Beta thalassemia intermedia
  • Beta thalassemia major
  • Beta thalassemia minor
  • Cooley's anemia
  • Erythroblastic anemia
More Names
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Conferences



ORDR-Sponsored Conferences

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Newborn Screening in the Genomic Era: Setting a Research Agenda, Monday, December 13, 2010 - Tuesday, December 14, 2010
    Location: Rockville, MD
    Description: This meeting allowed leaders in the fields of genomics and newborn screening to learn from each other and together explore new ways to advance research on new genomic technologies, potential health applications for newborn screening and beyond, and related ELSI issues.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • Clinical Research Priorities for Thalassemia, Wednesday, May 20, 2009 - Thursday, May 21, 2009
    Location: Bethesda, MD
    Description: The goal of this meeting was to allow interested individuals to express their opinions about the directions clinical research in thalassemia should take, given past experiences and limitations imposed by NIH budgets and regulatory requirements. These proceedings also served as the basis of a Request for Applications (RFA) for clinical trials in thalassemia.

  • Workshop on Non-Invasive Measurement of Iron: Cooley's Anemia, Tuesday, April 17, 2001 - Saturday, March 31, 2001
    Location: Bethesda, MD
    Description: The purpose of this conference was to evaluate potential methods for noninvasive measurement of body iron load.