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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pleuropulmonary blastoma


Other Names for this Disease

  • PPB
  • Pulmonary blastoma
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Pleuropulmonary blastoma. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists clinical trials, research studies, and patient registries enrolling people with this condition. Click on Orphanet to view the list.

Patient Registry

  • The International Pleuropulmonary Blastoma Registry is a collection of physicians, scientists, and data analysts from many institutions who have been working together for 20 years to evaluate cases of pleuropulmonary blastoma and research this condition. To learn more about the Registry click on the link above.

    The International Pleuropulmonary Blastoma Registry
    Pediatric Oncology
    Children's Hospitals and Clinics of Minnesota
    2545 Chicago Ave. S., Suite 412
    Minneapolis, MN 55404
    Phone: 612-813-7115
    Fax: 612-813-7108
    E-mail: gretchen.williams@childrensmn.org
  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.
Other Names for this Disease
  • PPB
  • Pulmonary blastoma
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.