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Genetic and Rare Diseases Information Center (GARD)

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Hepatocellular carcinoma, childhood

Other Names for this Disease
  • pediatric HCC
  • Pediatric hepatocellular carcinoma
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events

ORDR Co-Sponsored Conferences

  • Advancing Symptom Clusters Research on Rare Cancers, Wednesday, June 17, 2015
    Location: NIH Neuroscience Building, Bethesda, MD
    Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>

  • Strategies to Develop Therapies for Rare Tumors: Small Numbers, but Big Opportunities , Wednesday, June 17, 2015
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The goals of this symposium are to increase communication and build networks between researchers working in rare tumors across NIH, and to get input from patient groups, industry, and the FDA on how to overcome the biggest hurdles in the development of therapies for rare tumors. The Rare Tumors Initiative at NCI, CCR will use this information to prioritize goals for the future and will prepare a white paper summary to help guide researchers worldwide.

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
    Location: Building 31, 6C, Room 6, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
    Location: New Orleans, LA
    Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Genetic Diseases of Children: Advancing Research & Care, Monday, March 07, 2011 - Wednesday, March 09, 2011
    Location: Sheraton New York Hotel & Towers, New York, NY
    Description: The New York State Department of Health announced Genetic Diseases of Children: Advancing Research & Care. This national conference brought together the worlds of health, science, government, and industry with the families who look to them for answers.

  • Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
    Location: Bethesda, Maryland
    Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.

  • Immunotherapy in Pediatric Oncology: Progress and Challenges, Monday, October 11, 2010 - Tuesday, October 12, 2010
    Location: Texas Children’s Hospital/Baylor College of Medicine, Houston, Texas
    Description: Goals of this conference were to (1) enhance collaboration and cross-fertilization of ideas and approaches among this widely dispersed community; (2) provide opportunities for young immunotherapists to meet the “giants” in the field and thus enhance their careers; (3) provide the seeds for a collaborative network that would eventually represent a consortium of individuals working in this field, albeit focused on different pediatric tumors; and (4) bring together the community to address regulatory challenges in developing cell products for immune-based therapy, which will improve the efficiency of developing protocols that are acceptable to the Food and Drug Administration (FDA).

  • The 15th International Symposium on Cells of the Hepatic Sinusoid , Saturday, August 28, 2010 - Wednesday, September 01, 2010
    Location: Pasadena, California
    Description: Studies on the sinusoidal cells are becoming increasingly important in diverse areas ranging from stem cells, liver development and regeneration, and the pathogenesis of liver diseases such as steatohepatitis, fibrosis, and hepatocellular carcinoma (HCC) to therapeutic approaches including liver transplantation. The target audience was both established and junior investigators, graduate students, and postdoctoral fellows who work in these multidisciplinary fields. The symposium helped develop constructive international collaborations that would result in true advantages for people with rare liver diseases.

  • Workshop on the Etiology of Hepatocellular Carcinoma in the United States, Saturday, April 17, 2010
    Location: Embassy Suites Hotel - DC Convention Center, Washington, DC
    Description: The goal of this workshop was to assemble investigators of U.S.-based cohort studies in order to form a hepatocellular carcinoma (HCC) pooling project.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • Second International Workshop on Cholangiocarcinoma and Hepatocellular Carcinoma, Tuesday, October 06, 2009 - Wednesday, October 07, 2009
    Location: Natcher Conference Ctr., NIH Campus, Bethesda, MD
    Description: The objective of this workshop was to bring together basic researchers, clinicians, epidemiologists, and bioinformaticians worldwide who are experts in liver cancer biology and genetics study to exchange state-of-the-art and late-breaking discoveries. This meeting provided a forum for both intramural and extramural scientists for a better understanding of the latest research findings and implementation of these findings in diagnosis, treatment, and prevention of liver cancer. This meeting also promoted awareness of liver cancer research to the intramural community.

Other Conferences

  • The National Institute of Diabetes and Digestive and Kidney Diseases, National Cancer Institute, National Institute of Biomedical Imaging and Bioengineering, Department of Veteran Affairs, and Fogarty International Center sponsored a conference on hepatocellular carcinoma on April 1-3, 2004 to discuss the screening, diagnosis, and management of this type of cancer. You can view the agenda as well as a list of speakers by clicking here.
Other Names for this Disease
  • pediatric HCC
  • Pediatric hepatocellular carcinoma
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.