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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Non-Hodgkin lymphoma, childhood


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Conferences


ORDR-Sponsored Conferences

  • Advancing Symptom Clusters Research on Rare Cancers, Wednesday, June 17, 2015
    Location: NIH Neuroscience Building, Bethesda, MD
    Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>

  • The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015 - Wednesday, June 10, 2015
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.

  • Strategies to Develop Therapies for Rare Tumors: Small Numbers, but Big Opportunities , Fall 2014
    Location: NIH Natcher Conference Center, Bethesda, MD
    Description: The goals of this symposium are to increase communication and build networks between researchers working in rare tumors across NIH, and to get input from patient groups, industry, and the FDA on how to overcome the biggest hurdles in the development of therapies for rare tumors. The Rare Tumors Initiative at NCI, CCR will use this information to prioritize goals for the future and will prepare a white paper summary to help guide researchers worldwide.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
    Location: Bethesda, Maryland
    Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.

  • Immunotherapy in Pediatric Oncology: Progress and Challenges, Monday, October 11, 2010 - Tuesday, October 12, 2010
    Location: Texas Children’s Hospital/Baylor College of Medicine, Houston, Texas
    Description: Goals of this conference were to (1) enhance collaboration and cross-fertilization of ideas and approaches among this widely dispersed community; (2) provide opportunities for young immunotherapists to meet the “giants” in the field and thus enhance their careers; (3) provide the seeds for a collaborative network that would eventually represent a consortium of individuals working in this field, albeit focused on different pediatric tumors; and (4) bring together the community to address regulatory challenges in developing cell products for immune-based therapy, which will improve the efficiency of developing protocols that are acceptable to the Food and Drug Administration (FDA).

  • Etiology of cMyc Chromosomal Translocations, Friday, September 17, 2010
    Location: Lipsett Auditorium, Bethesda, Maryland
    Description: Workshop participants had an unprecedented opportunity to synthesize relevant functional, experimental, and human data on MYC-translocation to gain etiologic insight and provide direction for further research.

  • Uncovering Gene-Environment Interactions in Non-Hodgkin Lymphoma (NHL) and Its Subtypes: An Interlymph Workshop, Thursday, April 15, 2010 - Friday, April 16, 2010
    Location: Natcher Conference Center, Bethesda, MD
    Description: The goals of this conference were to coordinate and conduct pooled analyses of six gene-environment interactions for non-Hodgkin lymphoma (NHL) and to ascertain potential differences by NHL subtypes. This allowed us to understand the determinants of lymphomagenesis and identify potentially common mechanisms of action for lymphomagenesis between targeted genes and environmental risk factors. Scientific collaborations achieved from this meeting were aimed at enhancing interdisciplinary research in this understudied area of research.

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.

  • Hodgkin Lymphoma InterLymph Working Group Meeting, Monday, July 20, 2009 - Tuesday, July 21, 2009
    Location: Vancouver, British Colombia, Canada
    Description: The overarching goal of this conference was to coordinate and conduct pooled analyses of six gene-environment interactions for NHL and NHL subtypes. Comparisons to Hodgkin disease and multiple myeloma were also made to ascertain potential differences by different lymphomas. This allowed us to understand the determinants of lymphomagenesis and identify potentially common mechanisms of action for lymphomagenesis between targeted genes and environmental risk factors.

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.