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Genetic and Rare Diseases Information Center (GARD)

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Your Question

Is pineoblastoma a terminal illness?  What is the chance pineoblastoma can be cured?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the chance that a pineoblastoma will be cured?

Because each diagnosis is unique, it is difficult to determine the chance of curing a pineoblastoma.  Instead, research studies look at how many people are alive and for how long following their diagnosis; these measurements are used to estimate the survival rate.  Individuals with a pineoblastoma live an average of 20 months after their diagnosis, and 10% of affected individuals are alive 5 years after their diagnosis.[1]  Survival is better when individuals are older than age 3 when diagnosed, when treatment includes complete removal of the tumor during surgery, and when cancer cells have not spread to other parts of the body (metastasized).[1][2]
Last updated: 3/5/2013

How might pineoblastoma be treated?

Standard treatment for pineoblastoma begins with surgery to remove as much of the tumor as possible.  Surgery is followed by radiation therapy, which aims to destroy any cancer cells that may remain near the original location of the tumor, and chemotherapy, which is designed to kill any cancer cells that may have traveled to other parts of the body.[1]
Last updated: 3/5/2013

  • Tate MC, Rutkowski MJ, Parsa AT. Contemporary management of pineoblastoma. Neurosurgery Clinics of North America. 2011; 22:409-412. Accessed 3/5/2013.
  • Tate M, Sughrue ME, Rutkowski MJ, Kane AJ, Aranda D, McClinton L, McClinton L, Barani IJ, Parsa AT. The long-term postsurgical prognosis of patients with pineoblastoma. Cancer. 2012; 118:173-179. Accessed 3/5/2013.