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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Skin cancer, non melanoma, childhood


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Conferences



ORDR-Sponsored Conferences

  • 18th Annual Meeting of the PanAmerican Society of Pigment Cell Research, Sunday, September 08, 2013 - Wednesday, September 11, 2013
    Location: Fluno Center, University of Wisconsin, Madison, WI
    Description: The meeting is expected to enhance and benefit, by bringing together a relatively small group of scientists, the knowledge, collegiality, collaboration, and synergy within the pigment cell research community. More importantly, the meeting serves to encourage and support young investigators in their careers.

  • RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
    Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
    Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.

  • Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
    Location: Bethesda, Maryland
    Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.

  • Immunotherapy in Pediatric Oncology: Progress and Challenges, Monday, October 11, 2010 - Tuesday, October 12, 2010
    Location: Texas Children’s Hospital/Baylor College of Medicine, Houston, Texas
    Description: Goals of this conference were to (1) enhance collaboration and cross-fertilization of ideas and approaches among this widely dispersed community; (2) provide opportunities for young immunotherapists to meet the “giants” in the field and thus enhance their careers; (3) provide the seeds for a collaborative network that would eventually represent a consortium of individuals working in this field, albeit focused on different pediatric tumors; and (4) bring together the community to address regulatory challenges in developing cell products for immune-based therapy, which will improve the efficiency of developing protocols that are acceptable to the Food and Drug Administration (FDA).

  • VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
    Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
    Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.