Complement component deficiency
- The United States Immunodeficiency Network (USIDNET) is a research consortium that was established to advance scientific research in the primary immune deficiency diseases. USIDNET maintains a registry for patients with complement deficiencies. Click here to view the form. You can also contact USIDNET for further information on this registry.
40 West Chesapeake Avenue, Suite 308
Towson MD 21204-4803
Web site: www.usidnet.org
- ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
- NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.