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Genetic and Rare Diseases Information Center (GARD)

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Retroperitoneal fibrosis

Other Names for this Disease
  • Idiopathic retroperitoneal fibrosis
  • Ormond's disease
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How might retroperitoneal fibrosis be treated?

Treatment of retroperitoneal fibrosis may include:[1][2]

Surgery to remove the mass and free the ureters may be required. In some cases, the ureters will be moved to a different position in the body or wrapped in fat tissue harvested from other areas to prevent recurrence of the fibrosis. Stents (drainage tubes) placed in the ureter or in the renal pelvis may provide short-term relief of the symptoms until the mass can be removed. Corticosteroid therapy (a type of anti-inflammatory medicine) may help if surgery can't be done due to other medical conditions. In addition, some doctors use the drug tamoxifen to treat this condition.[2]

Last updated: 10/15/2013

  1. Vorvick LJ. Retroperitoneal fibrosis. MedlinePlus. March 17, 2011; Accessed 10/15/2013.
  2. Vaglio A, Salvarani C, Buzio C. Retroperitoneal fibrosis. Lancet. 2006; Accessed 10/15/2013.

Clinical Trials & Research for this Disease

  • lists trials that are studying or have studied Retroperitoneal fibrosis. Click on the link to go to to read descriptions of these studies.