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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Pseudoxanthoma elasticum


Other Names for this Disease

  • Gronblad Strandberg syndrome
  • PXE
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • National Association for Pseudoxanthoma Elasticum, Inc. (NAPE)
    8760 Manchester Road
    St. Louis, MO 63144-2724
    Telephone: 1 (314) 962 - 0100
    E-mail: NAPEStLouis@sbcglobal.net
    Website: http://www.pxenape.org

  • PXE International
    4301 Connecticut Avenue NW, Suite 404
    Washington, DC 20008-2369
    Telephone: 202.362.9599 (main office)
    Fax: 202.966.8553
    E-mail: info@pxe.org
    Website: http://www.pxe.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Gronblad Strandberg syndrome
  • PXE
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.